Tag: Rare Disease

Second Chance

July 14, 2023
brave mothercinemadocumentariesEntertainmentEpoch CinemaEpochTVFilm & TVincredible strength of family and musicinspirational songsRare Diseasesecond chanceteenage daughterwrite song
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A brave mother with a rare disease writes inspirational songs for her teenage daughter to sing, before receiving a transplant where the odds are 50/50. A documentary that captures the incredible strength of family and music. …

Miracles Abound for Boy With Rare, Devastating Diagnosis

March 26, 2023
brain treatmentBrightcytotronInspiredPeoplepontocerebellar hypoplasiaRare Disease
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Before Lucas Cote had ever had a full neurological exam, his mother sensed something was wrong—despite a pediatrician who dismissed concerns. For Dr. Jenni Bush, a quick prognosis was a necessity to fast-track her son’s recovery from whatever was at the root of his involuntary movements, inability to breastfeed, head lag, and lack of eye movement….

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Mom Thinks Her Little Girl Just ‘Needs Glasses’–then Doctor Gives Shocking News: ‘It’s Fatal’

May 4, 2021
Batten diseaseFamily & Homegene mutationLife & TraditionPeopleRare Disease
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Melissa had always been reliant on “planning” to determine her own destiny. She planned a successful business with her husband Dean Pollman; and together, they built a blended but “perfect” family, having four beautiful kids, and what seemed like the perfect life—going on camping trips, boating, and skiing in the winter—in Salem, Oregon. But seldom, if ever,…

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