Tag: Cystic Fibrosis

Experts Say Threat of Drug-Resistant Bacteria Will Grow Unless Congress Steps In

Experts say the increasing public health threat of antimicrobial resistance (AMR) is already putting vulnerable patients at risk, but Congress could step in to help. Testifying on July 11 before members of the Senate Health, Education, Labor, and Pensions Committee, Melinta Therapeutics President and CEO Christine Ann Miller noted that the issue was not far…


What Do We Know About Gene Therapy and Cystic Fibrosis?

Cystic fibrosis (CF) is the most common, fatal genetic disease in the United States. About 30,000 people in the United States have the disease. CF causes the body to produce thick, sticky mucus that clogs the lungs, leads to infection, and blocks the pancreas, which stops digestive enzymes from reaching the intestine where they are…


A Breakdown in Breathing

Cystic fibrosis (CF) is an inherited illness that ravages the lungs and many other organs in the body. Fifty years ago, children with CF generally died by about age 10. But wide-ranging research has led to dramatic improvements in treatment. Today, the life expectancy for CF patients in the U.S. has risen to about 37…


An Awesome Life

“I’ve been sick and dying my entire life. And yet, I am so proud of my life.” Claire Wienland is a shining example of staying positive and being strong, even when she has every reason not to. Such an inspiring story!


Teen With Cystic Fibrosis Becomes Record-Breaking Runner, Prepares for 2021 Ironman Races

A boy decided early in his life not to let his debilitating rare genetic disorder overcome him. Today the teen holds a record as the youngest person with cystic fibrosis to complete a full marathon and is empowering others with his determination and resilience. Michael Caruso Davis was diagnosed with cystic fibrosis at just three weeks old….